Sorry it's been a few days since my last post. Up until yesterday not much was going on.
Yesterday we had to drive about an hour down to Rady's Childrens Hospital in San Diego for two appointments. First we met with the
otolaryngology doctor. This is an ear nose throat doctor who will be doing Alex's tonsil removal surgery. The interesting thing we learned is that the doctor had heard about some trial studies done that show children with Psoriatic Arthritis do better after they have their tonsils removed. I explained to him that she has needed them out for over a year due to constantly getting tonsilitis/strep throat and that it had nothing to do with her PA. I will have to look into the research though.
Her surgery is scheduled for September 28th. She is excited about it because she is looking forward to no school and all the ice cream she wants! I don't have the heart to tell her that I read in her prep paper work that ice cream is not that good for her because of the dairy and it sticking around her throat. She loves smoothies and jello so we will try and go with those! I don't really know what her recovery will be like. The doctor said it will feel like a bad case of strep without the fever making your body hurt too. She can go back to school as soon as she is off the pain meds at which point she will probably feel better anyway. Best guess in 5-10 days.
Her next appointment was the MRI. They were sooo nice! Because MRI's take so long you are often the only patient waiting. We had a private waiting area with a tv which made Alex happy. It was good for me since we were 20 minutes early! Next they brought us into this room with three nurses! Not one, not two but three. All being so so sweet to Alex and asking her about school and what the MRI was all about. Next I notice one of the nurses is getting a needle out and I am thinking "what the H"....turns out she needed to have an IV to inject contrast fluid for the MRI. Once Alex heard this she turned white and started shaking! They put her in this cool recliner with special arms on it just for this purpose (putting in IV's). They also gave her a warm blanket. After she relaxed she did awesome. They let me go in the room with her and gave me a pair of ear plugs since MRI's are sooooo loud! She had to lay in a very awkward position on her stomach with one arm up above her head (superman) and the one with the IV straight down by her side. They put these huge headphones on her that had a radio station playing in them which made laying with her head turned to the side even harder. She looked so uncomfortable! The MRI took 50 minutes! I could not belive it took so long.....I guess with the IV it takes longer. She did absolutley perfect and didn't move an inch the whole time!
We got out of there at 1:30 just in time to rush home to get Kiersten and Ryan (her sister and brother) from school. But guess what...I got lost! I have gps on my phone but my phone died (and hubby had the charger). Needless to say I had to call the school and they had to wait in the office for about 15 minutes for me. Major Fail!
So here is what is next:
MRI results in 3 days
Tonsils out on the 28th
Eye doctor 10/4
Rheumatologist 10/5
Have you or your child had tonsils removed...if so please leave me a commnent on how it went, recovery time and what foods you suggest! Thanks!
